Make-A-Wish Foundation

   This Beautiful little girl is my now 9yr old cousin Hailey. Hailey was born with Chronic Lung Disease. For the past nine years Hailey has put up an amazing fight. She is the strongest little girl i know. She is unable to talk, due to her vocal box being  paralyzed & knows some sign language. Hailey loves messing with people and playing with her baby brother Keegan and her black lab Harley.

A couple weeks ago Hailey was admitted to Children's Hospital because she was having a hard time breathing. Everyday she was getting worse and worse, so she was place in PICU. The doctors told us, that they did all they can do.She was on the biggest Vent machine and that wasn't even helping her. Her stats went down to 64/32. The doctors told us its going to get worse before it can get better.
 Days went by and she remain the same, then the medicine they used to stabilize her was not working. She was fighting so hard to say awake. After that she started improving. We finally seen our little girl smile again & she was giving people her little attitude. About 2 days of showing improvement she was moved to a regular floor and in a regular room. I'm happy to say now she is home with  her Mommy & Daddy.
      Hailey has always been in and out of the hospital & no matter what she always comes through.


      Hailey is in the Make - A - Wish foundation and every summer we try to raise money to help Hailey and other kids that has the same condition as Hailey. On July 29th, ill be walking for my little cousin and all the other members of Make- A-Wish. This link below is Hailey's Team Page, Where everyone can donate. If you could donate it would mean the world to Hailey & Our Family. It doesnt matter how much, if you can only do a dollar that is totally fine. Just remember this is definitely going to a good cause.

Thank You Everyone



http://makeawishohio.kintera.org/faf/search/searchTeamPart.asp?ievent=1016671&lis=1&kntae1016671=DC5073C699EC475098E3AD453979425A&team=5121339

   First thing first!  Im proud to be able to say right now, that Billy & I are FINALLY home from the hospital. We couldnt be any happier. I want to thank all our family & friends who kept us in your prayers. We are so blessed to have all of you in our lives. Thank You!

   So I have made a new link up top^. its going to be all of Billy's Art work before & after his accident.  Right now i just have a few of his work that he has done since his accident, and there is definitely more to come. I just wanted to share all of these amazing drawings because one i'm so proud of him, for two, i know he wants me to show them off & for three,i mean how many of you out there can actually say you have seen someone draw with their mouth. It's amazing! But Billy is always drawing so ill always have pics up so just stay on the look out ;)

  This post is going to be about a lot of random things. I'm sorry!

   Billy and mine's recent fun activity we have been doing together is gardening. We both want to start something we never done before and our friends were begging us to do it with them, so we got drugged into it. It's surprisingly relaxing and very exciting. I'm honestly shocked were doing so well with it. I can't even keep a goldfish alive! I mean that has to tell you something. Anyways the things we decided to grow was Sweet Potatoes, String Beans, Carrots, & Tomatoes. Everything is getting so big. The one thing that amazes me is how fast they actually grow. I can't wait till everything starts coming up & we can eat. Nom Nom Nom ;)

Just a little FYI don't ever tell a little girl, that'll you'll play ISpy when you're  trying to write! Nothing will ever   get done ;) 

 As we speak, well type, I just received a phone call from my sister and she told me my Dad has to go to the hospital because he fell while mowing grass, had tripped over a angel statue that he has in the back yard. The wing of the angel stabbed him in his leg :( my poor daddy! I'm hoping he just need stitches though and its nothing serious, but doubt it is. to stay updated just follow me on Twitter :) 

Well I guess for now i'mma play with Billy's niece while he's asleep :)

talk to you guys later! 

 
       

    .

my poor baby

Billy finally sleeping without 3 days of sleep

         Sitting here looking out the hospital window. Can't wait to get out of here so Billy & I can be home with our pups. Never did I think we was going to be here for 5 days. 

Billy giving the nurses on hard time ;)

         Wednesday Billy was scheduled to get surgery to get a new Baclofen Pump. That morning Billy was struggling with breathing because his chest was very congested. The surgeons was afraid to operate on him because they felt that if they continued on with the surgery, the vent that they put in could get stuck, which would lead him having to be in ICU. Neither of us wanted to take chances with that. After that we was waiting to get discharged an Billy started to get worse & worse, so they kept us and we have been here for 5 days, we are very much wanting to go home.  With Billy being sick he has been having his mind on getting his tract back, :( he said when he had the tract, things were a lot better. I personally don't think he needs it but i mean i don't know how he felt when he had it but what i do know is that he is struggling now. I plan on supporting Billy with whatever choice he makes. We are a team and it will always be that way. I know if i had to make a decision about something to do with my health and staying healthy he would totally be by my side. I get scared, i mean i have the right to be.  I guess i tend to dwell on things, when i say things i mean the negative things. But i always tell myself that, that is just the devil working on me. But i decided not to really worry about it now until the time comes. All i care about is that he is healthy. We are get taking our the time to fix all the problems that could relate to making be him sick like this. Since his accident he has always had a fan on him of some sort, well his nurse told him that having that fan, is part of the reason why he has been so congested. With Billy being a quadriplegic his body can not regulate its own temperature, so he is constantly hot. Well maybe he just might be to dependent on the fan, so without it, he is overly heated.

        From today on, I'm putting my foot down and there will not be anymore sick Billy. I'm not having it! I want him to be healthy & I'm going to do anything in my power to keep him that way.

    

Opening Eyes

      Life is always full with some kind of excitement, being good or bad.
Have you ever thought if you were making the right decision when doing something? Most of us do. But what about when it comes to friends?

       Recently i've dealt with problems with a friend. Its gotten to the point to where when i'm with her i always have so much anger in me and to people would do know me know im definitely not that type of person. I've started opening my eyes an realizing that this relationship that her & I have is not a friendly relationship. A True Friend is a friend that is there for you, a friend gives you a push when your struggling or just not sure about something. Friends don't disrespect you infront of others & put you down. thats not a friend one bit!
With "her" the problem that is so hard to over come is that we've been friends since 8th grade. That's a long time. i'm currently 23 and she's 22 were not kids anymore. But when we get into arguments it just pushes me further and further away from her. When we go with out talking to each other i always think about the past and the good times we have together, which always sucks me in to talk to her again. I hate the fact that i do do that, because to me it really sad. that i cant just say no & leave me alone. 
       
        I sat down an talked to another good friend of mine about this problem, She opened my eyes completely. For me dealing with Panic Attacks and Depression i learned that being around "her" is effecting me in many ways and its not good for my health at all, to have so much negativity in my life. I plan to look to God for his guidance. I always say to myself, "If God didn't think we would not be able to handle things, he wouldn't have thrown it our way". Thinking of that constantly just tells me that i'm able to get away from all the negative things in my life. Without the Lord, Family & Friends i would probably be insane right now. But I plan to end my friendship with "her" and just starting a more healthier and positive life for me & people who are surround me. 


      Never let your friends treat you like your worth nothing! 
       
  -Bethany          
     

Goodbye Winter, HELLO Summer!

   

    Since maybe September Billy has been sick like crazy. I mean i cant even count on my fingers anymore how much he has been sick. This past winter was absolutely horrible, One day its freezing & snowing, the next day its hot & we're wearing shorts & flip flops. Sad to say Billy & I had countless of times we spent in the hospital.

      Now that its May & its getting warmer i'm really hoping we can say buh bye to all that & have a more healthier life. Our last visit to the hospital was actually a couple days ago. Billy had, had another spell where he woke up in the middle of the night & could not catch his breath for the life of him. He hasn't had one of these since maybe November. He was doing really good. But then I got a call at 4 in the morning from him saying they had to call the squad. its so scary & I just hate that this last time i wasn't by his side. So as i was saying we had to go to the hospital because since he had that spell. he was short of breath off & on & his chest was extremely tight. We was really hoping he wasn't getting Pneumonia again because he had all the symptoms that he had when he had Pneumonia the last time. At first Billy was being SUPER stubborn & kept putting it off for another day. When truthfully he was just getting worse, His nurse & I decided we was going to just call the squad. Well they took him in & we found out that he had a lot of air in his lungs. They gave him 3 different meds to help him. I'm happy that i'm able to say I have my baby back. He is back to his goofy self :)

     Today we found out that the 16th of this month is when Billy's surgery will be for him to get his NEW Baclofen Pump. For people who aren't familiar with the pump heres a link that tells about it:
http://en.wikipedia.org/wiki/Intrathecal_pump



Also I just came aware of this site. Its the late Christopher Reeve's foundation & I think its amazing way to help cure paralysis. Please check it out & donate :)
http://www.christopherreeve.org/site/c.ddJFKRNoFiG/b.4048063/k.C5D5/Christopher_Reeve_Spinal_Cord_Injury_and_Paralysis_Foundation.htm

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birdy, a photo by bmh3artsbg10 on Flickr.

Billy drawing a Humming bird

God Must have Spent a Little More Time on You :)