First i just wanted to say sorry for keeping everyone in the dark about what all was going on with Billy the past 2 weeks
   On the 3rd which was tuesday Billy wasn't feeling good at all. He didnt get up out of bed until later on that day, so we could go see fireworks. On our way seeing the fireworks he was really confused and did understand where he was going or where he was even at, he asked the same question every second. After the fireworks we came back to the apartment cause his nurse was there waiting for us and Billy wanted to lay down so bad, as Billy was getting put into bed I went to help out his neighbor. My mind was going nuts at that moment I didn't know what was going on him and I was terrified. After helping his neighbor I came back to find him spasming bad, when I say bad I mean bad. Remember Billy is a quad he can't move anything from the shoulders down. These spasm had his legs going up in the air and his body was launching forward. I have never seen him like this the 2 years I have been with him. Immediately I call the squad but his nurse kept telling me everything is okay, but I knew it wasn't. Squad came an Billy was basically back to himself, his spasms stopped and he refused to go to the hospital, even though i thought he should. All he wanted to do was get ready for bed and that's what we did. I was so worked up, my body was like jelly i was so scared to even sleep.

    Six o'clock the next morning  i wake up to him screaming for me. He was back to his spasms again, I could see it in his eyes he was struggling, his face was so red, his eyes were blood shock. I couldn't believe it. I called 911 right away, As i'm on the phone with them, his nurse walks through the door wondering whats going on, I thought seriously you don't see anything wrong?!?!?. I asked him how long has he been like this, his answer was all night. It made me furious knowing that he was struggling all night and this guy did not have the nerves to call the squad. This guy is a RN, people put all their trust into them and would never think this could ever happen. The next question i asked was what his  temp was. He said 99.2. I then went to the door because i thought the squad arrived but they didn't, came but into the  bedroom to see Billy's face buried into a pillow.I yelled at his nurse and asked what in the world was he doing and to not even touch Billy. He said he was changing him. The squad came and his nurse was no where to be found.

  We finally get to the hospital, Billy has no clue where he was or who i was even. Doctors took his temp it was 106 & Billy started having seizures. I was terrified and so angry because i thought i was going to lose Billy and I was beating myself up because if i didn't fall asleep that night, he probably of wouldn't have been this bad. Doctors found out he was having Baclofen Withdrawal. They transferred him to ICU. The next day they had to put him on the  vent machine because he was struggling so bad. Those days were the worst for me, I could not stop crying. When i had to leave him I cried and called the hospital continuously making sure he was okay. I could not bare going to his apartment and him not being there with me. I think i honestly prayed every minute i had. I knew God was with him.

   The Next day he went into surgery to get a new pump and line. The surgery was for 3 agonizing hours.  I was so happy when he was  out because i knew it was all going to go up from there and it did. Couple hours after surgery  i went to give him a kiss, and his eyes opened. He was  fighting to stay awake and did not like having the vent in. I kissed him again and just talked to him, he mouth I Love You and i started crying i knew God answered my prayers.

With God All Things Are Possible 

Auntie Em!!!!! Auntie Em!!!!

Can you say CRAZYY!!!

branches that caused our power to go off

    Yesterday was completely horrible. As the storms roll in Columbus, all you see is things flying in the air and trees swaying back and forth really hard. I'm not going to lie, I was really scared. But hear me out! Billy's neighbors started screaming everyone inside, i'm thinking there is a tornado, No there is just a HUGE fire right in the middle of the street behind Billy's apartment. We could literally see the flames over the privacy fence. This is where i freaked out, Billy was just wanting to have a day to relax and wanted to stay in bed. I did not have a clue how i was going to get him out if his apartment caught on fire (THATS HORRIBLE). To get to the point basically Billy & I was out of power from 5pm yesterday to 12 noon today. It was so hot!!! 

Aftermath

    Billy lives in a assistant living place called Creative Living. It's a really nice, independent  place for people who are handicap. Everyone who lives here are in wheelchairs. Multiple residents here use a Bipap  or Cpap at night when they sleep, Billy is one of them. Since the power was out no one was able to use them. The thing that gets me is that, you would think since it is a handicap complex, that they would have a back-up  generator for the whole place. But NO! 


   The only thing that counts is that EVERYONE was safe and everything is back to normal now. This storm caught me,well us a lesson.  We need to figure out a safe way to get Billy out of bed in an emergency. I feel horrible we haven't even talked about it. But we will have it taken care of.

   Everyone please stay safe! God Bless every one of you!
                                                                                          Talk to you all very soon!

Make-A-Wish Foundation

   This Beautiful little girl is my now 9yr old cousin Hailey. Hailey was born with Chronic Lung Disease. For the past nine years Hailey has put up an amazing fight. She is the strongest little girl i know. She is unable to talk, due to her vocal box being  paralyzed & knows some sign language. Hailey loves messing with people and playing with her baby brother Keegan and her black lab Harley.

A couple weeks ago Hailey was admitted to Children's Hospital because she was having a hard time breathing. Everyday she was getting worse and worse, so she was place in PICU. The doctors told us, that they did all they can do.She was on the biggest Vent machine and that wasn't even helping her. Her stats went down to 64/32. The doctors told us its going to get worse before it can get better.
 Days went by and she remain the same, then the medicine they used to stabilize her was not working. She was fighting so hard to say awake. After that she started improving. We finally seen our little girl smile again & she was giving people her little attitude. About 2 days of showing improvement she was moved to a regular floor and in a regular room. I'm happy to say now she is home with  her Mommy & Daddy.
      Hailey has always been in and out of the hospital & no matter what she always comes through.


      Hailey is in the Make - A - Wish foundation and every summer we try to raise money to help Hailey and other kids that has the same condition as Hailey. On July 29th, ill be walking for my little cousin and all the other members of Make- A-Wish. This link below is Hailey's Team Page, Where everyone can donate. If you could donate it would mean the world to Hailey & Our Family. It doesnt matter how much, if you can only do a dollar that is totally fine. Just remember this is definitely going to a good cause.

Thank You Everyone



http://makeawishohio.kintera.org/faf/search/searchTeamPart.asp?ievent=1016671&lis=1&kntae1016671=DC5073C699EC475098E3AD453979425A&team=5121339

   First thing first!  Im proud to be able to say right now, that Billy & I are FINALLY home from the hospital. We couldnt be any happier. I want to thank all our family & friends who kept us in your prayers. We are so blessed to have all of you in our lives. Thank You!

   So I have made a new link up top^. its going to be all of Billy's Art work before & after his accident.  Right now i just have a few of his work that he has done since his accident, and there is definitely more to come. I just wanted to share all of these amazing drawings because one i'm so proud of him, for two, i know he wants me to show them off & for three,i mean how many of you out there can actually say you have seen someone draw with their mouth. It's amazing! But Billy is always drawing so ill always have pics up so just stay on the look out ;)

  This post is going to be about a lot of random things. I'm sorry!

   Billy and mine's recent fun activity we have been doing together is gardening. We both want to start something we never done before and our friends were begging us to do it with them, so we got drugged into it. It's surprisingly relaxing and very exciting. I'm honestly shocked were doing so well with it. I can't even keep a goldfish alive! I mean that has to tell you something. Anyways the things we decided to grow was Sweet Potatoes, String Beans, Carrots, & Tomatoes. Everything is getting so big. The one thing that amazes me is how fast they actually grow. I can't wait till everything starts coming up & we can eat. Nom Nom Nom ;)

Just a little FYI don't ever tell a little girl, that'll you'll play ISpy when you're  trying to write! Nothing will ever   get done ;) 

 As we speak, well type, I just received a phone call from my sister and she told me my Dad has to go to the hospital because he fell while mowing grass, had tripped over a angel statue that he has in the back yard. The wing of the angel stabbed him in his leg :( my poor daddy! I'm hoping he just need stitches though and its nothing serious, but doubt it is. to stay updated just follow me on Twitter :) 

Well I guess for now i'mma play with Billy's niece while he's asleep :)

talk to you guys later! 

 
       

    .

my poor baby

Billy finally sleeping without 3 days of sleep

         Sitting here looking out the hospital window. Can't wait to get out of here so Billy & I can be home with our pups. Never did I think we was going to be here for 5 days. 

Billy giving the nurses on hard time ;)

         Wednesday Billy was scheduled to get surgery to get a new Baclofen Pump. That morning Billy was struggling with breathing because his chest was very congested. The surgeons was afraid to operate on him because they felt that if they continued on with the surgery, the vent that they put in could get stuck, which would lead him having to be in ICU. Neither of us wanted to take chances with that. After that we was waiting to get discharged an Billy started to get worse & worse, so they kept us and we have been here for 5 days, we are very much wanting to go home.  With Billy being sick he has been having his mind on getting his tract back, :( he said when he had the tract, things were a lot better. I personally don't think he needs it but i mean i don't know how he felt when he had it but what i do know is that he is struggling now. I plan on supporting Billy with whatever choice he makes. We are a team and it will always be that way. I know if i had to make a decision about something to do with my health and staying healthy he would totally be by my side. I get scared, i mean i have the right to be.  I guess i tend to dwell on things, when i say things i mean the negative things. But i always tell myself that, that is just the devil working on me. But i decided not to really worry about it now until the time comes. All i care about is that he is healthy. We are get taking our the time to fix all the problems that could relate to making be him sick like this. Since his accident he has always had a fan on him of some sort, well his nurse told him that having that fan, is part of the reason why he has been so congested. With Billy being a quadriplegic his body can not regulate its own temperature, so he is constantly hot. Well maybe he just might be to dependent on the fan, so without it, he is overly heated.

        From today on, I'm putting my foot down and there will not be anymore sick Billy. I'm not having it! I want him to be healthy & I'm going to do anything in my power to keep him that way.

    

Opening Eyes

      Life is always full with some kind of excitement, being good or bad.
Have you ever thought if you were making the right decision when doing something? Most of us do. But what about when it comes to friends?

       Recently i've dealt with problems with a friend. Its gotten to the point to where when i'm with her i always have so much anger in me and to people would do know me know im definitely not that type of person. I've started opening my eyes an realizing that this relationship that her & I have is not a friendly relationship. A True Friend is a friend that is there for you, a friend gives you a push when your struggling or just not sure about something. Friends don't disrespect you infront of others & put you down. thats not a friend one bit!
With "her" the problem that is so hard to over come is that we've been friends since 8th grade. That's a long time. i'm currently 23 and she's 22 were not kids anymore. But when we get into arguments it just pushes me further and further away from her. When we go with out talking to each other i always think about the past and the good times we have together, which always sucks me in to talk to her again. I hate the fact that i do do that, because to me it really sad. that i cant just say no & leave me alone. 
       
        I sat down an talked to another good friend of mine about this problem, She opened my eyes completely. For me dealing with Panic Attacks and Depression i learned that being around "her" is effecting me in many ways and its not good for my health at all, to have so much negativity in my life. I plan to look to God for his guidance. I always say to myself, "If God didn't think we would not be able to handle things, he wouldn't have thrown it our way". Thinking of that constantly just tells me that i'm able to get away from all the negative things in my life. Without the Lord, Family & Friends i would probably be insane right now. But I plan to end my friendship with "her" and just starting a more healthier and positive life for me & people who are surround me. 


      Never let your friends treat you like your worth nothing! 
       
  -Bethany          
     

Goodbye Winter, HELLO Summer!

   

    Since maybe September Billy has been sick like crazy. I mean i cant even count on my fingers anymore how much he has been sick. This past winter was absolutely horrible, One day its freezing & snowing, the next day its hot & we're wearing shorts & flip flops. Sad to say Billy & I had countless of times we spent in the hospital.

      Now that its May & its getting warmer i'm really hoping we can say buh bye to all that & have a more healthier life. Our last visit to the hospital was actually a couple days ago. Billy had, had another spell where he woke up in the middle of the night & could not catch his breath for the life of him. He hasn't had one of these since maybe November. He was doing really good. But then I got a call at 4 in the morning from him saying they had to call the squad. its so scary & I just hate that this last time i wasn't by his side. So as i was saying we had to go to the hospital because since he had that spell. he was short of breath off & on & his chest was extremely tight. We was really hoping he wasn't getting Pneumonia again because he had all the symptoms that he had when he had Pneumonia the last time. At first Billy was being SUPER stubborn & kept putting it off for another day. When truthfully he was just getting worse, His nurse & I decided we was going to just call the squad. Well they took him in & we found out that he had a lot of air in his lungs. They gave him 3 different meds to help him. I'm happy that i'm able to say I have my baby back. He is back to his goofy self :)

     Today we found out that the 16th of this month is when Billy's surgery will be for him to get his NEW Baclofen Pump. For people who aren't familiar with the pump heres a link that tells about it:
http://en.wikipedia.org/wiki/Intrathecal_pump



Also I just came aware of this site. Its the late Christopher Reeve's foundation & I think its amazing way to help cure paralysis. Please check it out & donate :)
http://www.christopherreeve.org/site/c.ddJFKRNoFiG/b.4048063/k.C5D5/Christopher_Reeve_Spinal_Cord_Injury_and_Paralysis_Foundation.htm