Hope everyone had a safe weekend! Billy & I really just relaxed most of the weekend and watched football. :) I'm really sad to admit this but I'm becoming a football nut. Like, I get so excited to watch our boys (Buckeyes) to play on Saturday & I'll even catch myself yelling at the tv. What's wrong with me? What kind of drug did Billy poison me with??
So Good News, I finally got a job at a Goodwill store like a block away from my house. Bad News, I haven't worked for about 4 years now. The reasoning for that is because I've been so into helping Billy, & just taking care of him. We've been having tons of problems with aides & nurses taking care of him, you would think since these people are nurses & health aides they would be trust worthy & professional but, we have yet to see it. Since I'm starting this job, my main concern is not being there for Billy if something goes wrong or someone doesn't show up. I should not have to worry if his aides or nurses are going to show up or not. It's just ridiculous. You are suppose to trust these people. I don't get it!!!
Billy's schedule for his aides is 10am to 6pm everyday & for nurses 10pm to 6am. So, this weekend we got a new aide because we found out the last aide was stealing from him. So this new girl started Saturday, we absolutely loved her. she was very nice and she didn't have a problem doing anything for Billy. We were so excited because we thought we finally found a good aide. Man! We were wrong. Today I had to go to my new job and fill out paperwork around noon. I get a message on Facebook from the new girl saying that she would be a little late. We were fine with that, if it was just a little late and I told her that I had to leave at 12 to go to the job and fill papers out, she said okay no problem I will be there soon. so 12 rolls around, she is nowhere to be found and is not answering her phone. i'm really mad at this point because I am supposed to be at my job and she never showed up and I'm not leaving Billy all alone. So I called the agency to see if they know where she is, they are speechless because she never told them and they have no clue where she's at. Okay more to the point, she shows up at 2:30 and the manager of the agency called me to make sure that this girl is there and then asked me if I ever thought about being Billy's aide. Of course I have! But I don't have my first aide or CPR. Luckily, she is willing to work with me and she asked if I could come in Monday morning and fill out papers and get the process movin.
At this point I'm so confused, because I have one job where I'm supposed to start this week at Goodwill and then I was offered another job being Billy's aide. I'm so confused because I don't know which one I should do or if I should do both. Working for Billy would take a lot of stress off my shoulders and it pays more than Goodwill. Plus I wouldn't have to worry about these unreliable aides and do it myself & get paid the same time. I think I love it ;) NEXT thing to do is go in to the agency tomorrow morning and fill out papers for them and get the process rolling. Oh My Lord! I want to scream! :)
Does anyone who has a love one, who is disabled, ever worry about if you will get tired of doing everything?? I don't feel that way but I'm so tired of people asking me this all the time. Then I start thinking about it and I'm not going to lie I get scared because I don't want to ever fill that way. Please give me your thoughts. Definitely appreciated.
God Bless
This July Bobby and I celebrated 14 years of marriage. Yes, there are days I don't want to do a bowel prep program and nights I don't want to be woken up to add/remove covers. But that's life. No matter what we're doing, whether a job or a hobby, there's going to be something about it that we're not crazy about. Marriage takes work. Adding a disability to it is adding a different dimension, but I've found that it also melds us closer together. We simply don't have the option of going to bed mad or storming off. And there's also the flip side...he gets just as tired of being trapped in his body (probably ten times more so) as I do being stuck to a non-wielding schedule. As for what people say, they're either concerned about you (that you're not being realistic, blinded with love) or they're just curious because they couldn't/wouldn't do it themselves. If it's concern, there's nothing wrong with being honest and saying "Some days I probably will get tired of it, just like I get tired of ...)" or "Yes, there will be weekends I need a break, and that's where I need good friends like to help out." The reality is, we quad wives CAN'T do it all. We do quite well, but we need help sometimess, too.
ReplyDeleteThank You Monica :)
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