Make-A-Wish Foundation

   This Beautiful little girl is my now 9yr old cousin Hailey. Hailey was born with Chronic Lung Disease. For the past nine years Hailey has put up an amazing fight. She is the strongest little girl i know. She is unable to talk, due to her vocal box being  paralyzed & knows some sign language. Hailey loves messing with people and playing with her baby brother Keegan and her black lab Harley.

A couple weeks ago Hailey was admitted to Children's Hospital because she was having a hard time breathing. Everyday she was getting worse and worse, so she was place in PICU. The doctors told us, that they did all they can do.She was on the biggest Vent machine and that wasn't even helping her. Her stats went down to 64/32. The doctors told us its going to get worse before it can get better.
 Days went by and she remain the same, then the medicine they used to stabilize her was not working. She was fighting so hard to say awake. After that she started improving. We finally seen our little girl smile again & she was giving people her little attitude. About 2 days of showing improvement she was moved to a regular floor and in a regular room. I'm happy to say now she is home with  her Mommy & Daddy.
      Hailey has always been in and out of the hospital & no matter what she always comes through.


      Hailey is in the Make - A - Wish foundation and every summer we try to raise money to help Hailey and other kids that has the same condition as Hailey. On July 29th, ill be walking for my little cousin and all the other members of Make- A-Wish. This link below is Hailey's Team Page, Where everyone can donate. If you could donate it would mean the world to Hailey & Our Family. It doesnt matter how much, if you can only do a dollar that is totally fine. Just remember this is definitely going to a good cause.

Thank You Everyone



http://makeawishohio.kintera.org/faf/search/searchTeamPart.asp?ievent=1016671&lis=1&kntae1016671=DC5073C699EC475098E3AD453979425A&team=5121339

   First thing first!  Im proud to be able to say right now, that Billy & I are FINALLY home from the hospital. We couldnt be any happier. I want to thank all our family & friends who kept us in your prayers. We are so blessed to have all of you in our lives. Thank You!

   So I have made a new link up top^. its going to be all of Billy's Art work before & after his accident.  Right now i just have a few of his work that he has done since his accident, and there is definitely more to come. I just wanted to share all of these amazing drawings because one i'm so proud of him, for two, i know he wants me to show them off & for three,i mean how many of you out there can actually say you have seen someone draw with their mouth. It's amazing! But Billy is always drawing so ill always have pics up so just stay on the look out ;)

  This post is going to be about a lot of random things. I'm sorry!

   Billy and mine's recent fun activity we have been doing together is gardening. We both want to start something we never done before and our friends were begging us to do it with them, so we got drugged into it. It's surprisingly relaxing and very exciting. I'm honestly shocked were doing so well with it. I can't even keep a goldfish alive! I mean that has to tell you something. Anyways the things we decided to grow was Sweet Potatoes, String Beans, Carrots, & Tomatoes. Everything is getting so big. The one thing that amazes me is how fast they actually grow. I can't wait till everything starts coming up & we can eat. Nom Nom Nom ;)

Just a little FYI don't ever tell a little girl, that'll you'll play ISpy when you're  trying to write! Nothing will ever   get done ;) 

 As we speak, well type, I just received a phone call from my sister and she told me my Dad has to go to the hospital because he fell while mowing grass, had tripped over a angel statue that he has in the back yard. The wing of the angel stabbed him in his leg :( my poor daddy! I'm hoping he just need stitches though and its nothing serious, but doubt it is. to stay updated just follow me on Twitter :) 

Well I guess for now i'mma play with Billy's niece while he's asleep :)

talk to you guys later! 

 
       

    .

my poor baby

Billy finally sleeping without 3 days of sleep

         Sitting here looking out the hospital window. Can't wait to get out of here so Billy & I can be home with our pups. Never did I think we was going to be here for 5 days. 

Billy giving the nurses on hard time ;)

         Wednesday Billy was scheduled to get surgery to get a new Baclofen Pump. That morning Billy was struggling with breathing because his chest was very congested. The surgeons was afraid to operate on him because they felt that if they continued on with the surgery, the vent that they put in could get stuck, which would lead him having to be in ICU. Neither of us wanted to take chances with that. After that we was waiting to get discharged an Billy started to get worse & worse, so they kept us and we have been here for 5 days, we are very much wanting to go home.  With Billy being sick he has been having his mind on getting his tract back, :( he said when he had the tract, things were a lot better. I personally don't think he needs it but i mean i don't know how he felt when he had it but what i do know is that he is struggling now. I plan on supporting Billy with whatever choice he makes. We are a team and it will always be that way. I know if i had to make a decision about something to do with my health and staying healthy he would totally be by my side. I get scared, i mean i have the right to be.  I guess i tend to dwell on things, when i say things i mean the negative things. But i always tell myself that, that is just the devil working on me. But i decided not to really worry about it now until the time comes. All i care about is that he is healthy. We are get taking our the time to fix all the problems that could relate to making be him sick like this. Since his accident he has always had a fan on him of some sort, well his nurse told him that having that fan, is part of the reason why he has been so congested. With Billy being a quadriplegic his body can not regulate its own temperature, so he is constantly hot. Well maybe he just might be to dependent on the fan, so without it, he is overly heated.

        From today on, I'm putting my foot down and there will not be anymore sick Billy. I'm not having it! I want him to be healthy & I'm going to do anything in my power to keep him that way.