First i just wanted to say sorry for keeping everyone in the dark about what all was going on with Billy the past 2 weeks
On the 3rd which was tuesday Billy wasn't feeling good at all. He didnt get up out of bed until later on that day, so we could go see fireworks. On our way seeing the fireworks he was really confused and did understand where he was going or where he was even at, he asked the same question every second. After the fireworks we came back to the apartment cause his nurse was there waiting for us and Billy wanted to lay down so bad, as Billy was getting put into bed I went to help out his neighbor. My mind was going nuts at that moment I didn't know what was going on him and I was terrified. After helping his neighbor I came back to find him spasming bad, when I say bad I mean bad. Remember Billy is a quad he can't move anything from the shoulders down. These spasm had his legs going up in the air and his body was launching forward. I have never seen him like this the 2 years I have been with him. Immediately I call the squad but his nurse kept telling me everything is okay, but I knew it wasn't. Squad came an Billy was basically back to himself, his spasms stopped and he refused to go to the hospital, even though i thought he should. All he wanted to do was get ready for bed and that's what we did. I was so worked up, my body was like jelly i was so scared to even sleep.
Six o'clock the next morning i wake up to him screaming for me. He was back to his spasms again, I could see it in his eyes he was struggling, his face was so red, his eyes were blood shock. I couldn't believe it. I called 911 right away, As i'm on the phone with them, his nurse walks through the door wondering whats going on, I thought seriously you don't see anything wrong?!?!?. I asked him how long has he been like this, his answer was all night. It made me furious knowing that he was struggling all night and this guy did not have the nerves to call the squad. This guy is a RN, people put all their trust into them and would never think this could ever happen. The next question i asked was what his temp was. He said 99.2. I then went to the door because i thought the squad arrived but they didn't, came but into the bedroom to see Billy's face buried into a pillow.I yelled at his nurse and asked what in the world was he doing and to not even touch Billy. He said he was changing him. The squad came and his nurse was no where to be found.
We finally get to the hospital, Billy has no clue where he was or who i was even. Doctors took his temp it was 106 & Billy started having seizures. I was terrified and so angry because i thought i was going to lose Billy and I was beating myself up because if i didn't fall asleep that night, he probably of wouldn't have been this bad. Doctors found out he was having Baclofen Withdrawal. They transferred him to ICU. The next day they had to put him on the vent machine because he was struggling so bad. Those days were the worst for me, I could not stop crying. When i had to leave him I cried and called the hospital continuously making sure he was okay. I could not bare going to his apartment and him not being there with me. I think i honestly prayed every minute i had. I knew God was with him.
The Next day he went into surgery to get a new pump and line. The surgery was for 3 agonizing hours. I was so happy when he was out because i knew it was all going to go up from there and it did. Couple hours after surgery i went to give him a kiss, and his eyes opened. He was fighting to stay awake and did not like having the vent in. I kissed him again and just talked to him, he mouth I Love You and i started crying i knew God answered my prayers.
With God All Things Are Possible